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Schleiss, MD, FAAP, University of Minnesota Medical School. Congenital infection with cytomegalovirus cCMV is common, and usually not recognized in the newborn nursery.

All pediatricians are familiar with the presentation of severely affected infants — hepatosplenomegaly, petechiae, microcephaly, hearing loss — but, in fact, most infants with cCMV are either asymptomatic or minimally symptomatic.

When cCMV is diagnosed and I see an affected infant in my clinical practice, virtually every family tells me that they never heard of this infection — before it happened to them!

More and more in recent years, I have wondered how it can be true that this infection — the single most common infectious diseases responsible for developmental disability, in particular hearing loss, in the United States — is so poorly known.

Indeed, there is much better awareness of diagnoses associated with neonatal disabilities, such as Down syndrome, fetal alcohol syndrome, and Zika virus infection, than for cCMV.

Fortunately, in the past year extensive progress has been made in advancing awareness of cCMV infection.

Advocacy: Driven by the efforts of a family in St. Paul affected by cCMV, legislation to promote knowledge of the risks of CMV to women of child-bearing age has been recently been introduced in the Minnesota Legislature.

This workshop featured faculty at the UMN actively engaged in CMV research, and break-out workshops for parents of children affected by cCMV who discussed their experiences and challenges dealing with health issues created by this infection.

The keynote speaker was Representative Kelly Fenton, primary sponsor of HF Research: Several active areas of research will provide new knowledge and insight into the problem of cCMV infection.

In collaboration with the MDH, we are conducting a universal newborn screening study of the prevalence and outcomes of cCMV in newborn nurseries.

This screening study is funded by the CDC Emerging Infections Program, and follow-up neurodevelopmental studies are funded through a March of Dimes Birth Defects Foundation grant.

This research has a tangible impact on practice. It is exciting to see so much innovative work in our community addressing the unmet need of identifying, treating, and ultimately preventing cCMV infections!

We look forward to Minnesota leading the nation in improving pregnancy outcomes and the health and development of our most valuable resource, our children!

Home Promoting Knowledge and Awareness of Congenital CMV. Promoting Knowledge and Awareness of Congenital CMV Uncategorized. Schleiss, MD, FAAP, University of Minnesota Medical School Congenital infection with cytomegalovirus cCMV is common, and usually not recognized in the newborn nursery.

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